Enabling open access to support biomedical research.
Author(s): Sarkar, Indra Neil
DOI: 10.1093/jamiaopen/ooz059
Author(s): Sarkar, Indra Neil
DOI: 10.1093/jamiaopen/ooz059
Researchers conduct studies with selection biases, which may limit generalizability and outcomes of intervention research. In this methodological reflection, we examined demographic and health characteristics of implantable cardioverter defibrillator patients who were excluded from an informatics intervention due to lack of access to a computer and/or the internet.
Author(s): Toscos, Tammy, Drouin, Michelle, Pater, Jessica, Flanagan, Mindy, Pfafman, Rachel, Mirro, Michael J
DOI: 10.1093/jamia/ocz058
Sexual and gender minority (SGM) people are underrepresented in research. We sought to create a digital research platform to engage, recruit, and retain SGM people in a national, longitudinal, dynamic, cohort study (The PRIDE Study) of SGM health.
Author(s): Lunn, Mitchell R, Lubensky, Micah, Hunt, Carolyn, Flentje, Annesa, Capriotti, Matthew R, Sooksaman, Chollada, Harnett, Todd, Currie, Del, Neal, Chris, Obedin-Maliver, Juno
DOI: 10.1093/jamia/ocz082
Transgender people face substantial mental health disparities, and this population's emotional well-being can be particularly volatile during gender transition. Understanding gender transition sentiment patterns can positively impact transgender people by enabling them to anticipate, and put support in place for, particularly difficult time periods. Yet, tracking sentiment over time throughout gender transition is challenging using traditional research methods. This study's objective was to use social media data to understand average [...]
Author(s): Haimson, Oliver L
DOI: 10.1093/jamia/ocz056
The study sought to determine whether interoperable, electronic health record-based referral (eReferral) produces higher rates of referral and connection to a state tobacco quitline than does fax-based referral, thus addressing low rates of smoking treatment delivery in health care.
Author(s): Fiore, Michael, Adsit, Rob, Zehner, Mark, McCarthy, Danielle, Lundsten, Susan, Hartlaub, Paul, Mahr, Todd, Gorrilla, Allison, Skora, Amy, Baker, Timothy
DOI: 10.1093/jamia/ocz044
Determine whether women and men differ in volunteering to join a Research Recruitment Registry when invited to participate via an electronic patient portal without human bias.
Author(s): Kannan, Vaishnavi, Wilkinson, Kathleen E, Varghese, Mereeja, Lynch-Medick, Sarah, Willett, Duwayne L, Bosler, Teresa A, Chu, Ling, Gates, Samantha I, Holbein, M E Blair, Willett, Mallory M, Reimold, Sharon C, Toto, Robert D
DOI: 10.1093/jamia/ocz038
Our scoping review examined how research on patient portals addresses health equity. Questions guiding our review were: 1) What health equity concepts are addressed in patient portal research-both explicitly and implicitly? 2) What are the gaps? 3) Is the potential for ehealth-related health inequities explicitly acknowledged in studies on patient portals? 4) What novel approaches and interventions to reduce health inequities are tested in patient portal research?
Author(s): Antonio, Marcy G, Petrovskaya, Olga, Lau, Francis
DOI: 10.1093/jamia/ocz054
Examine whether individual, geographic, and economic phenotypes predict missing data on specific drug involvement in overdose deaths, manifesting inequities in overdose mortality data, which is a key data source used in measuring the opioid epidemic.
Author(s): Boslett, Andrew J, Denham, Alina, Hill, Elaine L, Adams, Meredith C B
DOI: 10.1093/jamia/ocz050
Rural public health system leaders struggle to access and use data for understanding local health inequities and to effectively allocate scarce resources to populations in need. This study sought to determine these rural public health system leaders' data access, capacity, and training needs.
Author(s): Bekemeier, Betty, Park, Seungeun, Backonja, Uba, Ornelas, India, Turner, Anne M
DOI: 10.1093/jamia/ocz037
More than 100 studies document disparities in patient portal use among vulnerable populations. Developing and testing strategies to reduce disparities in use is essential to ensure portals benefit all populations.
Author(s): Grossman, Lisa V, Masterson Creber, Ruth M, Benda, Natalie C, Wright, Drew, Vawdrey, David K, Ancker, Jessica S
DOI: 10.1093/jamia/ocz023