A coalition of 90+ research and patient organizations, including American Medical Informatics Association, opposes the FY 2027 budget proposal cutting the National Institutes of Health by over 12%. The letter warns cuts would halt research, eliminate jobs, and weaken U.S. innovation, urging Congress to fund NIH at $51.3 billion and […]
AMIA provided recommendations on the draft USCDI Version 7 to improve data quality, interoperability, and equity. It emphasizes clearer definitions, inclusion of environmental and social health factors, enhanced provenance, better medication and device tracking, and patient-centered data. AMIA urges ONC to adopt standardized, flexible frameworks supporting nationwide health data exchange.
Patient ID Now is calling on House and Senate appropriators to repeal Section 510 in the FY27 Labor-HHS appropriations bill, which restricts federal action on a national patient identifier. The group argues the decades-old policy contributes to medical errors, higher costs, and privacy risks due to inaccurate patient matching. Removing […]
AMIA's comments on NIH's Draft Controlled-Access Data Policy and revised Genomic Data Sharing Policy call for a flexible, risk-based framework that moves beyond rigid data-type categorizations. Key recommendations include harmonizing NIH data policies, investing in repository infrastructure and workforce capacity, avoiding prescriptive security standards that burden under-resourced institutions, and enabling […]