Informatics for sex- and gender-related health: understanding the problems, developing new methods, and designing new solutions.
Author(s): Boland, Mary Regina, Elhadad, Noémie, Pratt, Wanda
DOI: 10.1093/jamia/ocab287
Author(s): Boland, Mary Regina, Elhadad, Noémie, Pratt, Wanda
DOI: 10.1093/jamia/ocab287
The present study examined the gender-specific prognostic value of blood pressure (BP) and its variability in the prediction of dementia risk and developed a score system for risk stratification.
Author(s): Zhou, Jiandong, Lee, Sharen, Wong, Wing Tak, Waleed, Khalid Bin, Leung, Keith Sai Kit, Lee, Teddy Tai Loy, Wai, Abraham Ka Chung, Liu, Tong, Chang, Carlin, Cheung, Bernard Man Yung, Zhang, Qingpeng, Tse, Gary
DOI: 10.1093/jamia/ocab173
The aim of this study was to examine trends in the intended users and functionalities advertised by menstrual tracking apps to identify gaps in personas and intended needs fulfilled by these technologies.
Author(s): Pichon, Adrienne, Jackman, Kasey B, Winkler, Inga T, Bobel, Chris, Elhadad, Noémie
DOI: 10.1093/jamia/ocab212
Most digital health systems (DHS) are unable to capture gender, sex, and sexual orientation (GSSO) data beyond a single binary attribute with female and male options. This binary system discourages access to preventative screening and gender-affirming care for sexual and gender minority (SGM) people. We conducted this 1-year multi-method project and cocreated an action plan to modernize GSSO information practices in Canadian DHS. The proposed actions are to: (1) Envisage [...]
Author(s): Antonio, Marcy, Lau, Francis, Davison, Kelly, Devor, Aaron, Queen, Roz, Courtney, Karen
DOI: 10.1093/jamia/ocab183
Accurate representation of clinical sex and gender identity in interoperable clinical systems is a major challenge for organizations intent on improving outcomes for sex- and gender-marginalized people. Improved data collection has been hindered by the historical approach that presumed a single, often binary, datum was sufficient. We describe the Health Level Seven International (HL7) Gender Harmony logical model that proposes an improved approach.
Author(s): McClure, Robert C, Macumber, Caroline L, Kronk, Clair, Grasso, Chris, Horn, Robert J, Queen, Roz, Posnack, Steven, Davison, Kelly
DOI: 10.1093/jamia/ocab196
To report the relationship of outpatient portal (OPP) use with clinical risk, area social determinants of health (SDoH), and race/ethnicity among pregnant women. Regression models predicting overall and individual portal feature use (main effects and interactions) based on key variables were specified using log files and clinical data. Overall OPP use among non-Hispanic Black women or patients who lived in lower SDoH neighborhoods were significantly less. High-risk pregnancy patients were [...]
Author(s): Singh, Priti, Jonnalagadda, Pallavi, Morgan, Evan, Fareed, Naleef
DOI: 10.1093/jamia/ocab242
Transgender people experience harassment, denial of services, and physical assault during healthcare visits. Electronic health record (EHR) structure and language can exacerbate the harm they experience by using transphobic terminology, emphasizing binary genders, and pathologizing transness. Here, we investigate the ways in which SNOMED CT and ICD-10-CM record gender-related terminology and explore their shortcomings as they contribute to this EHR-mediated violence. We discuss how this "standardized" gender-related medical terminology pathologizes [...]
Author(s): Ram, A, Kronk, Clair A, Eleazer, Jacob R, Goulet, Joseph L, Brandt, Cynthia A, Wang, Karen H
DOI: 10.1093/jamia/ocab200
We aimed to establish a comprehensive digital phenotype for postpartum hemorrhage (PPH). Current guidelines rely primarily on estimates of blood loss, which can be inaccurate and biased and ignore complementary information readily available in electronic medical records (EMR). Inaccurate and incomplete phenotyping contributes to ongoing challenges in tracking PPH outcomes, developing more accurate risk assessments, and identifying novel interventions.
Author(s): Zheutlin, Amanda B, Vieira, Luciana, Shewcraft, Ryan A, Li, Shilong, Wang, Zichen, Schadt, Emilio, Kao, Yu-Han, Gross, Susan, Dolan, Siobhan M, Stone, Joanne, Schadt, Eric, Li, Li
DOI: 10.1093/jamia/ocab181
The study sought to develop and apply a framework that uses a clinical phenotyping tool to assess risk for recurrent preterm birth.
Author(s): Rattsev, Ilia, Flaks-Manov, Natalie, Jelin, Angie C, Bai, Jiawei, Taylor, Casey Overby
DOI: 10.1093/jamia/ocab184
The purpose of this study was to measure the association between neighborhood deprivation and cesarean delivery following labor induction among people delivering at term (≥37 weeks of gestation).
Author(s): Meeker, Jessica R, Burris, Heather H, Bai, Ray, Levine, Lisa D, Boland, Mary Regina
DOI: 10.1093/jamia/ocab258