Patient and researcher stakeholder preferences for use of electronic health record data: a qualitative study to guide the design and development of a platform to honor patient preferences.
This qualitative study aimed to understand patient and researcher perspectives regarding consent and data-sharing preferences for research and a patient-centered system to manage consent and data-sharing preferences.
Author(s): Morse, Brad, Kim, Katherine K, Xu, Zixuan, Matsumoto, Cynthia G, Schilling, Lisa M, Ohno-Machado, Lucila, Mak, Selene S, Keller, Michelle S
DOI: 10.1093/jamia/ocad058