Comparative analysis of stakeholder experiences with an online approach to prioritizing patient-centered research topics.
Little evidence exists about effective and scalable methods for meaningful stakeholder engagement in research. We explored patient/caregiver experiences with a high-tech online engagement approach for patient-centered research prioritization, compared their experiences with those of professional stakeholders, and identified factors associated with favorable participant experiences.
Author(s): Khodyakov, Dmitry, Grant, Sean, Meeker, Daniella, Booth, Marika, Pacheco-Santivanez, Nathaly, Kim, Katherine K
DOI: 10.1093/jamia/ocw157