Building on Diana Forsythe's legacy: the value of human experience and context in biomedical and health informatics.
Author(s): Unertl, Kim M, Abraham, Joanna, Bakken, Suzanne
DOI: 10.1093/jamia/ocaa337
Author(s): Unertl, Kim M, Abraham, Joanna, Bakken, Suzanne
DOI: 10.1093/jamia/ocaa337
To elicit novel ideas for informatics solutions to support individuals through the menopausal transition. (Note: We use "individuals experiencing menopause" and "experiences" rather than "symptoms" when possible to counter typical framing of menopause as a cisgender women's medical problem.).
Author(s): Backonja, Uba, Taylor-Swanson, Lisa, Miller, Andrew D, Jung, Se-Hee, Haldar, Shefali, Woods, Nancy Fugate
DOI: 10.1093/jamia/ocaa178
Diane Forsythe and other feminist scholars have long shown how system builders' tacit assumptions lead to the systematic erasure of certain users from the design process. In spite of this phenomena being known in the health informatics literature for decades, recent research shows how patient portals and electronic patients health records continue to reproduce health inequalities in Western societies. To better understand this discrepancy between scholarly awareness of such inequities [...]
Author(s): Goedhart, Nicole S, Zuiderent-Jerak, Teun, Woudstra, Joey, Broerse, Jacqueline E W, Betten, Afke Wieke, Dedding, Christine
DOI: 10.1093/jamia/ocaa273
The widespread use of telehealth resulting from the COVID-19 pandemic has the potential to further exacerbate inequities faced by people with disabilities. Although, for some members of the disability community, the option to engage with telehealth may result in reduced barriers to care, for others, inadequate attention to the design, implementation, and policy dimensions may be detrimental. Addressing such considerations is imperative to mitigate health inequities faced by the disability [...]
Author(s): Valdez, Rupa S, Rogers, Courtney C, Claypool, Henry, Trieshmann, Lucy, Frye, Olivia, Wellbeloved-Stone, Claire, Kushalnagar, Poorna
DOI: 10.1093/jamia/ocaa297
Our goal is to summarize the collective experience of 15 organizations in dealing with uncoordinated efforts that result in unnecessary delays in understanding, predicting, preparing for, containing, and mitigating the COVID-19 pandemic in the US. Response efforts involve the collection and analysis of data corresponding to healthcare organizations, public health departments, socioeconomic indicators, as well as additional signals collected directly from individuals and communities. We focused on electronic health record [...]
Author(s): Madhavan, Subha, Bastarache, Lisa, Brown, Jeffrey S, Butte, Atul J, Dorr, David A, Embi, Peter J, Friedman, Charles P, Johnson, Kevin B, Moore, Jason H, Kohane, Isaac S, Payne, Philip R O, Tenenbaum, Jessica D, Weiner, Mark G, Wilcox, Adam B, Ohno-Machado, Lucila
DOI: 10.1093/jamia/ocaa287
The study sought to outline how a clinical risk prediction model for identifying patients at risk of infection is perceived by home care nurses, and to inform how the output of the model could be integrated into a clinical workflow.
Author(s): Dowding, Dawn, Russell, David, McDonald, Margaret V, Trifilio, Marygrace, Song, Jiyoun, Brickner, Carlin, Shang, Jingjing
DOI: 10.1093/jamia/ocaa267
The study sought to examine the effects of technology-supported exercise programs on the knee pain, physical function, and quality of life of individuals with knee osteoarthritis and/or chronic knee pain by a systematic review and meta-analysis of randomized controlled trials.
Author(s): Chen, Tianrong, Or, Calvin Kalun, Chen, Jiayin
DOI: 10.1093/jamia/ocaa282
Qualitative methods are particularly well-suited to studying the complexities and contingencies that emerge in the development, preparation, and implementation of technological interventions in real-world clinical practice, and much remains to be done to use these methods to their full advantage. We aimed to analyze how qualitative methods have been used in health informatics research, focusing on objectives, populations studied, data collection, analysis methods, and fields of analytical origin.
Author(s): Hussain, Mustafa I, Figueiredo, Mayara Costa, Tran, Brian D, Su, Zhaoyuan, Molldrem, Stephen, Eikey, Elizabeth V, Chen, Yunan
DOI: 10.1093/jamia/ocaa179
Peer mentors have been proven to improve diabetes outcomes, especially among diverse patients. Delivering peer mentoring via remote strategies (phone, text, mobile applications) is critical, especially in light of the recent pandemic. We conducted a real-world evaluation of a remote diabetes intervention in a safety-net delivery system in New York. We summarized the uptake, content, and pre-post clinical effectiveness for English- and Spanish-speaking participants. Of patients who could be reached [...]
Author(s): Lyles, Courtney R, Sarkar, Urmimala, Patel, Urvashi, Lisker, Sarah, Stark, Allison, Guzman, Vanessa, Patel, Ashwin
DOI: 10.1093/jamia/ocaa251
Our study estimates the prevalence and predictors of wearable device adoption and data sharing with healthcare providers in a nationally representative sample.
Author(s): Turner, Kea, Jo, Ara, Wei, Grace, Tabriz, Amir Alishahi, Clary, Alecia, Jim, Heather S L
DOI: 10.1093/jamia/ocaa272