Comparison of family health history in surveys vs electronic health record data mapped to the observational medical outcomes partnership data model in the All of Us Research Program.
Family health history is important to clinical care and precision medicine. Prior studies show gaps in data collected from patient surveys and electronic health records (EHRs). The All of Us Research Program collects family history from participants via surveys and EHRs. This Demonstration Project aims to evaluate availability of family health history information within the publicly available data from All of Us and to characterize the data from both sources.
Author(s): Cronin, Robert M, Halvorson, Alese E, Springer, Cassie, Feng, Xiaoke, Sulieman, Lina, Loperena-Cortes, Roxana, Mayo, Kelsey, Carroll, Robert J, Chen, Qingxia, Ahmedani, Brian K, Karnes, Jason, Korf, Bruce, O'Donnell, Christopher J, Qian, Jun, Ramirez, Andrea H
DOI: 10.1093/jamia/ocaa315