Exploring patient motivations and preferences for medical data sharing with researchers: a simulation study using the iAgree platform.
This study explores patient motivations and preferences for sharing medical data with researchers using the iAgree platform. We examine how study characteristics, including data type requested and data-sharing arrangements, influence consent decisions, and assess the role of demographic factors, privacy concerns, and perceived benefits in shaping data-sharing behavior.
Author(s): Keller, Michelle Sophie, Nguyen, An T, Leder, Chloe, Chen, Yunan, Morse, Brad, Schilling, Lisa M, Hu, Di, SooHoo, Spencer, Ohno-Machado, Lucila
DOI: 10.1093/jamia/ocag060