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Congenital heart disease (CHD) patients with single ventricle physiology (SVP) have heterogeneous characteristics that challenge cohort classification. We aim to develop a phenotyping algorithm that accurately identifies SVP patients using electronic health record (EHR) data.

We survey clinical document corpora, with a focus on German textual data. Due to rigid data privacy legislation in Germany, these resources, with only few exceptions, are stored in protected clinical data spaces and locked against clinic-external researchers. This situation stands in stark contrast with established workflows in the field of natural language processing, where easy accessibility and reuse of (textual) data collections are common practice. Hence, alternative corpus designs [...]

This work evaluated algorithmic bias in biomarkers classification using electronic pathology reports from female breast cancer cases. Bias was assessed across 5 subgroups: cancer registry, race, Hispanic ethnicity, age at diagnosis, and socioeconomic status.

Electronic patient portals (PP) allow for targeted and efficient research recruitment. We assessed pre- and postnatal women's recruitment methods preferences, focusing on PP.

The objective of the study was to determine, after medication review, the patient risk score threshold that would distinguish between stays with prescriptions triggering pharmacist intervention (PI) and stays with prescriptions not triggering PI.

Data-sharing policies are rapidly evolving toward increased data sharing. However, participants' perspectives are not well understood and could have an adverse impact on participation in research. We evaluated participants' preferences for sharing specific types of data with specific groups, and strategies to enhance trust in data-sharing practices.

Health-care institutions customize electronic health record (EHR) configurations to reflect their unique workflows and patient care priorities. Ensuring EHR alignment across sites facilitates seamless information exchange. We developed a pipeline for EHR flowsheet alignment between health-care organizations. The pipeline is augmented by mapping flowsheet data fields to concepts in the Clinical Care Classification (CCC) nursing terminology.

Establishing a robust and secure framework allowing creation and sharing of custom features within the REDCap electronic data capture platform.

Frequent premature ventricular complexes (PVCs) can lead to adverse health conditions such as cardiomyopathy. The linear correlation between PVC frequency and heart rate (as positive, negative, or neutral) on a 24-hour Holter recording has been proposed as a way to classify patients and guide treatment with beta-blockers. Our objective was to evaluate the robustness of this classification to measurement methodology, different 24-hour periods, and nonlinear dependencies of PVCs on heart [...]