Integrating public preferences to overcome racial disparities in research: findings from a US survey on enhancing trust in research data-sharing practices.
Data-sharing policies are rapidly evolving toward increased data sharing. However, participants' perspectives are not well understood and could have an adverse impact on participation in research. We evaluated participants' preferences for sharing specific types of data with specific groups, and strategies to enhance trust in data-sharing practices.
Author(s): Niño de Rivera, Stephanie, Zhao, Yihong, Omollo, Shalom, Eslami, Sarah, Benda, Natalie, Sharma, Yashika, Reading Turchioe, Meghan, Sharko, Marianne, Dugdale, Lydia S, Masterson Creber, Ruth
DOI: 10.1093/jamiaopen/ooaf031