Identifying the capabilities for creating next-generation registries: a guide for data leaders and a case for "registry science".
The increasing demands for curated, high-quality research data are driving the emergence of a novel registry type. The need to assemble, curate, and export this data grows, and the conventional simplicity of registry models is driving the need for advanced, multimodal data registries-the dawn of the next-generation registry.
Author(s): Labkoff, Steven E, Quintana, Yuri, Rozenblit, Leon
DOI: 10.1093/jamia/ocae024