Patient-led data sharing for clinical bioinformatics research: USCDI and beyond.
The 21st Century Cures Act, passed in 2016, and the Final Rules it called for create a roadmap for enabling patient access to their electronic health information. The set of data to be made available, as determined by the Office of the National Coordinator for Health IT through the US Core Data for Interoperability expansion process, will impact the value creation of this improved data liquidity. In this commentary, we [...]
Author(s): Gordon, William J, Gottlieb, Daniel, Kreda, David, Mandel, Joshua C, Mandl, Kenneth D, Kohane, Isaac S
DOI: 10.1093/jamia/ocab133