A Viewpoint on the Information Sharing Paradox.
Author(s): Stenner, Shane P, Rice, William, Nelson, Scott D
DOI: 10.1055/s-0040-1713413
Author(s): Stenner, Shane P, Rice, William, Nelson, Scott D
DOI: 10.1055/s-0040-1713413
Relaxation of laws and regulations around privacy and billing during the COVID-19 pandemic provide expanded opportunities to use telehealth to provide patient care at a distance. Many health systems have transitioned to providing outpatient care via telehealth; however, there is an opportunity to utilize telehealth for inpatients to promote physical distancing.
Author(s): Hron, Jonathan D, Parsons, Chase R, Williams, Lee Ann, Harper, Marvin B, Bourgeois, Fabienne C
DOI: 10.1055/s-0040-1713635
Patient portals provide patients and their caregivers online access to limited health results. Health care employees with electronic health record (EHR) access may be able to view their health information not available in the patient portal by looking in the EHR.
Author(s): Sulieman, Lina, Steitz, Bryan, Rosenbloom, S Trent
DOI: 10.1055/s-0040-1713412
Public engagement in health and biomedical research is being influenced by the paradigm of citizen science. However, conventional health and biomedical research relies on sophisticated research data management tools and methods. Considering these, what contribution can citizen science make in this field of research? How can it follow research protocols and produce reliable results?
Author(s): Borda, Ann, Gray, Kathleen, Fu, Yuqing
DOI: 10.1093/jamiaopen/ooz052
The growing prevalence of chronic conditions requiring changes in lifestyle and at-home self-management has increased interest in and need for supplementing clinic visits with data generated by patients outside the clinic. Patient-generated health data (PGHD) support the ability to diagnose and manage chronic conditions, to improve health outcomes, and have the potential to facilitate more "connected health" between patients and their care teams; however, health systems have been slow to [...]
Author(s): Austin, Elizabeth, Lee, Jenney R, Amtmann, Dagmar, Bloch, Rich, Lawrence, Sarah O, McCall, Debbe, Munson, Sean, Lavallee, Danielle C
DOI: 10.1093/jamiaopen/ooz065
Critical care units (CCUs) with extensive use of various monitoring devices generate massive data. To utilize the valuable information of these devices; data are collected and stored using systems like clinical information system and laboratory information management system. These systems are proprietary, allow limited access to their database and, have the vendor-specific clinical implementation. In this study, we focus on developing an open-source web-based meta-data repository for CCU representing stay [...]
Author(s): Singh, Harpreet, Kaur, Ravneet, Saluja, Satish, Cho, Su Jin, Kaur, Avneet, Pandey, Ashish Kumar, Gupta, Shubham, Das, Ritu, Kumar, Praveen, Palma, Jonathan, Yadav, Gautam, Sun, Yao
DOI: 10.1093/jamiaopen/ooz064
The active involvement of citizen scientists in setting research agendas, partnering with academic investigators to conduct research, analyzing and disseminating results, and implementing learnings from research can improve both processes and outcomes. Adopting a citizen science approach to the practice of precision medicine in clinical care and research will require healthcare providers, researchers, and institutions to address a number of technical, organizational, and citizen scientist collaboration issues. Some changes can [...]
Author(s): Petersen, Carolyn, Austin, Robin R, Backonja, Uba, Campos, Hugo, Chung, Arlene E, Hekler, Eric B, Hsueh, Pei-Yun S, Kim, Katherine K, Pho, Anthony, Salmi, Liz, Solomonides, Anthony, Valdez, Rupa S
DOI: 10.1093/jamiaopen/ooz060
Author(s):
DOI: 10.1093/jamia/ocz227
Author(s): Bakken, Suzanne
DOI: 10.1093/jamia/ocaa025
While there has been a substantial increase in health information exchange, levels of outside records use by frontline providers are low. We assessed whether integration between outside data and local data results in increased viewing of outside records, overall and by encounter, provider, and patient type.
Author(s): Adler-Milstein, Julia, Wang, Michael D
DOI: 10.1093/jamia/ocaa006