A community-engaged approach to developing common data elements: a case study from the RADx-UP Long COVID common data elements Task Force.
In response to requests from several Rapid Acceleration of Diagnostics-Underserved Populations (RADx-UP) community-engaged research projects to include Long COVID common data elements (CDEs) in the existing RADx-UP CDEs, the RADx-UP Coordination and Data Collection Center (CDCC) leadership formed the Long COVID CDEs Task Force.
Author(s): Pike Welch, Helena L, Guest, Gregory, Garba, Halima, Carrillo, Gabriel A, Damman, Allyn M, Kibbe, Warren A
DOI: 10.1093/jamiaopen/ooaf046