Informatics for sex- and gender-related health: understanding the problems, developing new methods, and designing new solutions.
Author(s): Boland, Mary Regina, Elhadad, Noémie, Pratt, Wanda
DOI: 10.1093/jamia/ocab287
Author(s): Boland, Mary Regina, Elhadad, Noémie, Pratt, Wanda
DOI: 10.1093/jamia/ocab287
The purpose of this study was to demonstrate how analyzing social media posts can uncover microaggressions and generate new cultural insights. We explore why Korean women hesitate to seek recommended gynecological care and how microaggressions visible in social media reveal insights for counteracting such harmful messaging.
Author(s): Ryu, Hyeyoung, Pratt, Wanda
DOI: 10.1093/jamia/ocab208
This qualitative research examines how transgender and gender nonbinary (T/GNB) persons from South Carolina navigate informational barriers within healthcare systems. This navigation can be described through the lens of information practices, or how T/GNB participants create, seek, use, and share information to achieve desired healthcare outcomes. Special focus is given to the roles of Information and Communication Technologies (ICTs) in shaping these practices.
Author(s): Wagner, Travis L, Kitzie, Vanessa L, Lookingbill, Valerie
DOI: 10.1093/jamia/ocab234
Accurate representation of clinical sex and gender identity in interoperable clinical systems is a major challenge for organizations intent on improving outcomes for sex- and gender-marginalized people. Improved data collection has been hindered by the historical approach that presumed a single, often binary, datum was sufficient. We describe the Health Level Seven International (HL7) Gender Harmony logical model that proposes an improved approach.
Author(s): McClure, Robert C, Macumber, Caroline L, Kronk, Clair, Grasso, Chris, Horn, Robert J, Queen, Roz, Posnack, Steven, Davison, Kelly
DOI: 10.1093/jamia/ocab196
We aimed to establish a comprehensive digital phenotype for postpartum hemorrhage (PPH). Current guidelines rely primarily on estimates of blood loss, which can be inaccurate and biased and ignore complementary information readily available in electronic medical records (EMR). Inaccurate and incomplete phenotyping contributes to ongoing challenges in tracking PPH outcomes, developing more accurate risk assessments, and identifying novel interventions.
Author(s): Zheutlin, Amanda B, Vieira, Luciana, Shewcraft, Ryan A, Li, Shilong, Wang, Zichen, Schadt, Emilio, Kao, Yu-Han, Gross, Susan, Dolan, Siobhan M, Stone, Joanne, Schadt, Eric, Li, Li
DOI: 10.1093/jamia/ocab181
The purpose of this study is to describe online health information seeking among a sample of transgender and gender diverse (TGD) people compared with cisgender sexual minority people to explore associations with human papillomavirus (HPV) vaccination, and whether general health literacy and eHealth literacy moderate this relationship.
Author(s): Pho, Anthony T, Bakken, Suzanne, Lunn, Mitchell R, Lubensky, Micah E, Flentje, Annesa, Dastur, Zubin, Obedin-Maliver, Juno
DOI: 10.1093/jamia/ocab150
To report the relationship of outpatient portal (OPP) use with clinical risk, area social determinants of health (SDoH), and race/ethnicity among pregnant women. Regression models predicting overall and individual portal feature use (main effects and interactions) based on key variables were specified using log files and clinical data. Overall OPP use among non-Hispanic Black women or patients who lived in lower SDoH neighborhoods were significantly less. High-risk pregnancy patients were [...]
Author(s): Singh, Priti, Jonnalagadda, Pallavi, Morgan, Evan, Fareed, Naleef
DOI: 10.1093/jamia/ocab242
Data on the safety and effectiveness of contraception among women with rare diseases are critical and sorely lacking. To fill this gap, we propose a national, patient-driven database that tracks contraceptive safety and effectiveness among women with rare diseases. We built a pilot database focusing on women with cystic fibrosis in 3 phases: (1) database design input from patients and experts, (2) merging of contraceptive survey data with relevant clinical outcomes [...]
Author(s): Josephy, Tatiana, Loeffler, Deena R, Pam, Molly, Godfrey, Emily M
DOI: 10.1093/jamia/ocab224
Most digital health systems (DHS) are unable to capture gender, sex, and sexual orientation (GSSO) data beyond a single binary attribute with female and male options. This binary system discourages access to preventative screening and gender-affirming care for sexual and gender minority (SGM) people. We conducted this 1-year multi-method project and cocreated an action plan to modernize GSSO information practices in Canadian DHS. The proposed actions are to: (1) Envisage [...]
Author(s): Antonio, Marcy, Lau, Francis, Davison, Kelly, Devor, Aaron, Queen, Roz, Courtney, Karen
DOI: 10.1093/jamia/ocab183
The study sought to develop and apply a framework that uses a clinical phenotyping tool to assess risk for recurrent preterm birth.
Author(s): Rattsev, Ilia, Flaks-Manov, Natalie, Jelin, Angie C, Bai, Jiawei, Taylor, Casey Overby
DOI: 10.1093/jamia/ocab184