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The coronavirus disease 2019 pandemic has resulted in large-scale changes to incorporate telemedicine for the delivery of care. People with cystic fibrosis (CF) have care considerations that pose challenges to telemedicine; they include frequent visits for pulmonary disease progression, medication management, and evaluation by a multidisciplinary team of providers. We share our center's experience with video visits replacing in-person clinic evaluation, using quality improvement strategies to create a replicable workflow [...]

Aggregate de-identified data from electronic health records (EHRs) provide a valuable resource for research. The Standardized Health data and Research Exchange (SHaRE) is a diverse group of US healthcare organizations contributing to the Cerner Health Facts (HF) and Cerner Real-World Data (CRWD) initiatives. The 51 facilities at the 7 founding organizations have provided data about more than 4.8 million patients with 63 million encounters to HF and 7.4 million patients [...]

To evaluate the attitudes of the parties involved in the system toward the new features and measure the potential benefits of introducing the use of blockchain and machine learning (ML) to strengthen the in-place methods for safely prescribing medication. The proposed blockchain will strengthen the security and privacy of the patient's prescription information shared in the network. Once the ePrescription is submitted, it is only available in read-only mode. This [...]

To evaluate patient experience with a prenatal telemedicine visit and identify barriers to accessing telemedicine among rural pregnant people in northern New England during the beginning of the COVID-19 pandemic.

Reproducibility in medical research has been a long-standing issue. More recently, the COVID-19 pandemic has publicly underlined this fact as the retraction of several studies reached out to general media audiences. A significant number of these retractions occurred after in-depth scrutiny of the methodology and results by the scientific community. Consequently, these retractions have undermined confidence in the peer-review process, which is not considered sufficiently reliable to generate trust in [...]

The FlywheelMS study will explore the use of a real-world health record data set generated by PicnicHealth, a patient-centric health records platform, to improve understanding of disease course and patterns of care for patients with multiple sclerosis (MS).

We designed an mHealth application (app) user interface (UI) prototype informed by participatory design sessions, persuasive systems design (PSD) principles, and Lorig and Holman's self-management behavior framework to support self-management activities of Hispanic informal dementia caregivers and assessed their perceptions and preferences regarding features and functions of the app.

To inform training needs for the revised Certified Clinical Data Manager (CCDMTM) Exam.

We describe implementation and usage of a coronavirus disease 2019 (COVID-19) digital information hub delivered through the widely adopted The Weather Company (TWC) application and explore COVID-19 knowledge, behaviors, and information needs of users. TWC deployed the tool, which displayed local case counts and trends, in March 2020. Unique users, visits, and interactions with tool features were measured. In August 2020, a cross-sectional survey assessed respondent characteristics, COVID-19 knowledge, behaviors [...]

To produce a systematic review (SR), reviewers typically screen thousands of titles and abstracts of articles manually to find a small number which are read in full text to find relevant articles included in the final SR. Here, we evaluate a proposed automated probabilistic publication type screening strategy applied to the randomized controlled trial (RCT) articles (i.e., those which present clinical outcome results of RCT studies) included in a corpus [...]