Establishing data elements and exchange standards to support long COVID healthcare and research.
The Multiple Chronic Conditions (MCCs) Electronic Care (e-Care) Plan project aims to establish care planning data standards for individuals living with MCCs. This article reports on the portion of the project focused on long COVID and presents the process of identifying and modeling data elements using the HL7 Fast Healthcare Interoperability Resources (FHIR) standard.
Author(s): Dolin, Gay, Saitwal, Himali, Bertodatti, Karen, Mueller, Savanah, Bierman, Arlene S, Suls, Jerry, Brandt, Katie, Camara, Djibril S, Leppry, Stephanie, Jones, Emma, Gallego, Evelyn, Carlson, Dave, Norton, Jenna
DOI: 10.1093/jamiaopen/ooae095