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In comments submitted to the NIH, AMIA supported an expansive update to its 2003 data sharing policy, recommending a phased approach to implement new data management and sharing requirements for NIH-funded research. It also noted that quality data management and sharing plans are prerequisite to the NIH’s goals of making […]

Partnering with AHIMA, AMIA recommended that policymakers modernize HIPAA by either establishing a new term, “Health Data Set,” which includes all clinical, biomedical, and claims data maintained by a Covered Entity or Business Associate, or by revising the existing HIPAA “Designated Record Set” definition and require Certified Health IT to […]

In response to a Request for Comment from the National Telecommunications and Information Administration, AMIA urged the administration to seek harmonization of federal data privacy policies, while also ensuring that consumer access to and control over his or her data be the baseline for its policies.

AMIA strongly encouraged the Trump administration to leverage an existing strategy on Artificial Intelligence Research and Development (AI R&D), rather than begin from scratch. It additionally emphasized a need for federal investments in areas of strong societal importance not aimed at consumer markets, especially related to human-AI collaboration and the […]