Designing Granular Consent Tools for Sensitive Health Data: Challenges, User Needs, and Stakeholder Guidance.
This study aimed to examine perspectives on challenges, design requirements, and implementation considerations for developing a granular, patient-facing consent tool that enables meaningful control over sensitive health data sharing in real-world healthcare settings.
Author(s): Cooper, Reid A, Wei, Mengyi, Kaiser, Martha, Caine, Kelly, Chavez, Daniel J, Coughlin, Jeff, Davison, Kelly, Galvin, Hannah K, Lane, Steven, Laws, Alec, Lehmann, Christoph Ulrich, Lossy, Panna, Moen, Maria D, Rosenbloom, S Trent, Seitz, Jacqueline, Sharko, Marianne, Skapik, Julia, Uy, Raymonde, Weaver, L, Grando, Maria Adela
DOI: 10.1055/a-2900-1473