A systematic literature review of Native American and Pacific Islanders' perspectives on health data privacy in the United States.
Privacy-related concerns can prevent equitable participation in health research by US Indigenous communities. However, studies focused on these communities' views regarding health data privacy, including systematic reviews, are lacking.
Author(s): Taitingfong, Riley, Bloss, Cinnamon S, Triplett, Cynthia, Cakici, Julie, Garrison, Nanibaa', Cole, Shelley, Stoner, Julie A, Ohno-Machado, Lucila
DOI: 10.1093/jamia/ocaa235