REDCap and the National Mesothelioma Virtual Bank-a scalable and sustainable model for rare disease biorepositories.
Rare disease research requires data sharing networks to power translational studies. We describe novel use of Research Electronic Data Capture (REDCap), a web application for managing clinical data, by the National Mesothelioma Virtual Bank, a federated biospecimen, and data sharing network.
Author(s): Rashid, Rumana, Copelli, Susan, Silverstein, Jonathan C, Becich, Michael J
DOI: 10.1093/jamia/ocad132