Identifying and prioritizing benefits and risks of using privacy-enhancing software through participatory design: a nominal group technique study with patients living with chronic conditions.
While patients often contribute data for research, they want researchers to protect their data. As part of a participatory design of privacy-enhancing software, this study explored patients' perceptions of privacy protection in research using their healthcare data.
Author(s): Giannouchos, Theodoros V, Ferdinand, Alva O, Ilangovan, Gurudev, Ragan, Eric, Nowell, W Benjamin, Kum, Hye-Chung, Schmit, Cason D
DOI: 10.1093/jamia/ocab073