A powerful partnership: researchers and patients working together to develop a patient-facing summary of clinical trial outcome data.
Availability of easy-to-understand patient-reported outcome (PRO) trial data may help individuals make more informed healthcare decisions. Easily interpretable, patient-centric PRO data summaries and visualizations are therefore needed. This three-stage study explored graphical format preferences, understanding, and interpretability of clinical trial PRO data presented to people with prostate cancer (PC).
Author(s): Ruzich, Emily, Ritchie, Jason, Ginchereau Sowell, France, Mansur, Aliyah, Griffiths, Pip, Birkett, Hannah, Harman, Diane, Spink, Jayne, James, David, Reaney, Matthew
DOI: 10.1093/jamia/ocad099