July 13, 2023
AMIA’s leadership and staff consistently value and prioritize health data privacy through our country’s ever-changing healthcare landscape. In 2020, AMIA published a set of Policy Principles, which details our stance on the need for health and healthcare data privacy as follows:
- Health and healthcare data must be protected to reduce the risks of harm to individuals.
- An individual’s privacy protections must be consistently maintained, and their privacy preferences respected across clinical, research, community services, and commercial use of their health and healthcare data.
- Health data must always be collected, managed, and shared in ways that minimize the risk of reidentification of individuals.
Based on this stance, AMIA adamantly opposes the sharing of identifiable patient data by a provider without individual permission from the patient outside of regulatory requirements.