Top News
NLM Webinar Introducing the Dataset Catalog
AMIA will be co-hosting a webinar with the National Library for Medicine (NLM) on the beta version of the Dataset Catalog on April 8 at 2:00 p.m. ET. The Dataset Catalog is intended to improve the discoverability and reuse of research data by making it easier for users to search, find, and connect biomedical datasets. During this beta phase, NLM is inviting users to explore the tool and provide feedback on both the tool and the underlying data model. User feedback obtained during this phase will inform future tool development.
During this webinar, the speakers will discuss the importance of enabling discovery and advancing findability of biomedical research data and provide an overview of the recently launched Dataset Catalog and its underlying data model.
AMIA Comments on AHRQ Documentation Burden Technical Brief
AMIA’s 25x5 Task Force nominated Documentation Burden as a topic to be briefed by the Agency for Healthcare Research and Quality (AHRQ) in June 2022 to identify the need to better understand how co-production of documentation improvement efforts with patients and caregivers could be successful and to understand and develop the evidence on measurement of documentation burden. AMIA applauds the AHRQ on this thorough Brief. AMIA’s comments focus on the next steps for addressing documentation burden.
AMIA Response to NIH RFI: Strategic Plan for Data Science 2023-2028
The National Institute of Health (NIH) issued a Request for Information (RFI) to solicit public comments on the updated NIH Strategic Plan for Data Science, 2023-2028. AMIA commented on the appropriateness of the goals and where the association and its members could potentially partner with NIH.
Regulatory
A Look Ahead on ONC’s HTI-2
Micky Tripathi, National Coordinator for Health IT at ONC, recently wrote on what we can expect from the second installment of Patient Engagement, Information Sharing, and Public Health Interoperability Proposed Rule (HTI-2).
HTI-2 highlights include:
- Standards adoptions for interoperability
- Impact on standards adoption on USCDI
- Public health data modernization and public health IT advancements through certification requirements
- Information sharing
- Certifications for APIs focused on use cases such as e-prior authorization, patient engagement, care management, and care coordination
Check out the HTI-2 HealthITbuzz article.
National Academy of Medicine First Health Workforce Well-Being Day
On March 18, the National Academy of Medicine (NAM) marked the first annual Health Workforce Well-Being Day. NAM also announced that more than 350 institutions have signed up to be NAM Change Makers. One of the big releases on Health Workforce Well-Being Day is the Impact Welling Guide by the National Institute for Occupational Safety and Health to help hospital leaders with meaningful improvements for professional wellbeing.
See more information on the Health Workforce Well-Being Day.
ICYMI
DOJ Releases ANPRM: Provisions Regarding Access to Americans' Bulk Sensitive Personal Data and Government-related Data by Countries of Concern
The National Security Division of the Department of Justice (DOJ) released a proposed rule open to comment reviewing on what are the necessary measures to protect access of Americans’ sensitive data from countries of concern. This Advanced Notice of Proposed Rulemaking (ANPRM) follows an Executive Order issued from President Biden.
The DOJ is tasked with figuring out “specific, carefully calibrated actions to minimize the risks associated with access to Americans' bulk sensitive personal data by countries of concern.” The DOJ is considering a program that would identify prohibited transactions and restricted transactions to mitigate the risk of access to sensitive data. This program would define six categories of bulk U.S. sensitive personal data for transactions, including personal health data, biometric identifiers, and human genomic data.
The ANPRM is seeking comment on several questions around the proposed definitions, thresholds, and framework. One question AMIA could with is if any unintended consequences could result from the definitions by DOJ, in particular what extent would DOJ’s approach affect individuals’ rights to share their own health data.
Submit comments to the ANPRM by April 19.
Around the World
- NLM Office Hours for the Dataset Catalog Thursday, April 11, at 2:00 p.m. ET.
- Register for the NLM Dataset Catalog Office Hours.
- Email questions in advance of the office hours with the subject line “NLM Office Hours” to NLMTrainers@nih.gov.
- ONC Health IT Certification Roundtable Wednesday, March 27, at 12:00 p.m. ET.
AMIA’s Washington Download is your source for health informatics policy news and information from around the Beltway, covering action from the Hill, the Administration, and important AMIA collaborators.