PCORnet® Studies: After 10 Years, What is Fit-for-Purpose Informatics? Since 2014, the Patient Centered Outcomes Research Institute (PCORI) has invested over $900 million in the infrastructure of PCORnet®, designed to empower people to make informed health care decisions by enabling clinical research that is faster, easier, and, most importantly, more relevant to their needs. PCORnet is a large, highly representative, national “network of networks” that collects data routinely gathered in a variety of health care settings, including hospitals, doctors’ offices, and community clinics. These electronic health record data are standardized against the PCORnet Common Data Model (CDM) and highly curated. This presentation will highlight ongoing research projects and programs to demonstrate the informatics needs of observational epidemiology, national-scale surveillance, prospective trial research programs, and the perspectives of patient and clinician collaborators. This presentation will showcase research programs aiming to utilize real-world data and underscore the importance of collaborations between clinical researchers, public health professionals, informaticists, clinicians, and patients in improving the future of embedded research.
Learning Objectives
- Identify key informatics challenges and solutions in observational epidemiology, national-scale surveillance, and prospective trial research programs.
- Evaluate the impact of collaborative approaches among clinical researchers, public health professionals, informaticists, clinicians, and patients on the success of research programs.
- Discuss ongoing research initiatives that address informatics needs and highlight the integration of patient and clinician perspectives to improve research relevance and effectiveness.
Moderator
- Greg Merritt, PhD (PatientisPartner)
Speakers
- Emily O'Brien, PhD (Duke University)
- Jason Block, MD, MPH (Harvard Medical School)
- Schuyler Jones, MD (Duke Clinical Research Institute)
- Kathleen McTigue, MD, MPH (University of Pittsburgh)
- Jason Block (PCORI)
Continuing Education Credit
Physicians
The American Medical Informatics Association is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.
The American Medical Informatics Association designates this online enduring material for 1.25 AMA PRA Category 1™ credits. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
Claim credit no later than March 10, 2028 or within two years of your purchase date, whichever is sooner. No credit will be issued after March 10, 2028.
ACHIPsTM
AMIA Health Informatics Certified ProfessionalsTM (ACHIPsTM) can earn 1 professional development unit (PDU) per contact hour.
ACHIPsTM may use CME/CNE certificates or the ACHIPsTM Recertification Log to report 2025 Summit sessions attended for ACHIPsTM Recertification.
Claim credit no later than within three years of the release date or within two years of your purchase date, whichever is sooner.