Dobbs and the future of health data privacy for patients and healthcare organizations
Authors Ellen Clayton, Peter Embi, and Bradley Malin discuss this month's JAMIA Journal Club selection:
Clayton E, Embi P, and Malin B. Dobbs and the future of health data privacy for patients and healthcare organizations. J Am Med Inform Assoc. 2022;ocac155. doi:10.1093/jamia/ocac155.
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Ellen Wright Clayton, MD, JD, is the Craig-Weaver Professor of Pediatrics, Professor of Health Policy, and Co-Founder of the Center for Biomedical Ethics and Society at Vanderbilt University Medical Center and Professor of Law at Vanderbilt Law School. She is one of the principal investigators for the NIH Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe) and is a co-investigator of the NIH AIM-AHEAD consortium, and the NIH Bridge2AI Center. She is a member of the National Academy of Medicine where she has held numerous leadership roles and is currently a member of the NASEM Advisory Group on Impacts of Abortion Restrictions.
Peter Embí, MD, MS, serves as Professor and Chair of the Department of Biomedical Informatics (DBMI), Professor of Medicine, and Senior Vice President for Research and Innovation at Vanderbilt University Medical Center (VUMC). His areas of interest include clinical informatics, research informatics, public health informatics, and data-driven learning health systems. Dr. Embí has been elected to Fellowship in the American College of Physicians (FACP), the American College of Medical Informatics (FACMI), the American Medical Informatics Association (FAMIA) and the International Academy of Health Sciences Informatics (FIAHSI). He has also served in numerous national leadership roles, including as the immediate past president and chair of the Board of Directors of the American Medical Informatics Association. He also has served on many national advisory boards, including service on the Board of Scientific Counselors to the National Library of Medicine and on the National Advisory Council for the Agency for Healthcare Research and Quality (AHRQ).
Bradley Malin, PhD, is Vice Chair for Research Affairs in the Department of Biomedical Informatics at Vanderbilt University Medical Center, as well as the Accenture Professor of Biomedical Informatics, Biostatistics, and Computer Science at Vanderbilt University. He is the co-director of the Vanderbilt Health Data Science Center, and one of the principal investigators for the NIH Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe), the NIH AIM-AHEAD consortium, and the NIH Bridge2AI Center. Among various accolades, he is an inducted member of the National Academy of Medicine.
Statement of Purpose
Earlier this year, the Supreme Court overturned settled case law that affirmed a pregnant individual's Constitutional right to an abortion. While many states will commit to protect this right, a large number of others have enacted laws that limit or outright ban abortion within their borders. Additional efforts are underway to prevent pregnant individuals from seeking care outside their home state. These changes have significant implications for delivery of healthcare as well as for patient-provider confidentiality. In particular, these laws will influence how information is documented in and accessed via electronic health records and how personal health applications are utilized in the consumer domain. In this session, we will discuss how these changes may lead to confusion and conflict regarding use of health information, both within and across state lines, why current health information security practices may need to be reconsidered, and what policy options may be possible to protect individuals' health information.
The target audience for this activity is professionals and students interested in health informatics.
After participating in this webinar the listener should be better able to:
- Understand recent developments with respect to the law and electronic health records (EHR) management and access
- Characterize the implications of Dobbs v. Jackson Women's Health Organization on patient privacy within and across U.S. state boundaries
- Gain intuition into various ways by which healthcare organizations and EHR system developers can work to maximize patient privacy
- 35-minute presentation by article author(s) considering salient features of the published study and its potential impact on practice
- 25-minute discussion of questions submitted by listeners via the webinar tools and moderated by JAMIA Student Editorial Board members
The American Medical Informatics Association is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians.
No commercial support was received for this activity.
Disclosures for this Activity
The following planners and staff who are in a position to control the content of this activity disclose that they have no financial relationships with commercial interests/ineligible entities:
Presenters: Ellen Wright Clayton; Bradley Malin; Peter Embi
JAMIA Journal Club Planners: Harry Reyes Nieva; Courtney Rogers; Kirk Roberts
AMIA Staff: Susanne Arnold